Our next event will take place on Tuesday, April 22nd at 11am (US-Eastern) where we will be joined by Dr. Manon Auffret, who will present a webinar entitled, "Terminal care in Parkinson's disease: a case for subcutaneous apomorphine?".
Webinar/research description:
There are currently no recommendations on the therapeutic management of Parkinson's disease (PD) patients at the end of life. Progressive or sudden swallowing difficulties are common at this stage, leading to a compromised oral route and subsequent dopaminergic deprivation. Complications may arise, further exacerbating clinical decline and discomfort. Compensating for an inaccessible oral route therefore seems critical. Alternative routes of administration, such as rotigotine patch, have been explored, but not without significant side effects requiring ethical considerations. Here, we describe our experience with continuous subcutaneous apomorphine infusion (CSAI) for symptoms relief and terminal care. Of note, CSAI has just been approved by the FDA for use in the USA for people with progressing PD who experience significant “off” time or motor fluctuations.
Dr. Manon Auffret is a French pharmacist and neuroscientist, who has been working in the field of Parkinson's disease (PD) for more than 10 years. Her primary research interests are apomorphine, PD and history of neuroscience.. She has been doing some work in neuropalliative care in PD since 2018, and has joined the American Academy of Neurology (AAN) palliative care section as well as the International Neuropalliative Care Society (INPCS), where she is a member of several committees. She just recently joined the EAN Palliative Care panel.
X account: https://x.com/Manon_Auffret
LinkedIn account: https://www.linkedin.com/in/manon-auffret-phd/
Webinars in the series will consist of a presentation followed by an open Q&A and group discussion, with the webinar lasting an hour in total.
While the primary target audience is researchers and health care providers, interested patients and family caregivers are also welcome to attend.
Additional details are described in Frequently Asked Questions or please email info@inpcs.org.
If you would like to be added to our mailing list for notification of future Research Webinars, to suggest topics, or to sign up as a future presenter, please follow this link.
Sincerely,
Darin Zahuranec
Co-Chair, INPCS Research Committee
Caroline Crooms
Research Webinar Subcommittee
Andrew Huang
Research Webinar Subcommittee