Neuropalliative Care Research Webinar Series

The International Neuropalliative Care Society (INPCS) is pleased to announce the continuation of our monthly recurring Neuropalliative Care Research Webinar Series.

Our next event will take place on Wednesday, May 29th at 10am (US-Eastern) where we will be joined by Dr. Ambereen Mehta and Dr. Sam Maiser, who will present a webinar entitled, "Quality of Life Enhancement for People Living with Amyotrophic Lateral Sclerosis: Work in Progress".

Webinar/research description:
The definition of quality of life for people living with ALS is still unclear. Despite having validated measurement tools, their regular use and meaningful impact for patients and the healthcare staff also needs further understanding. Drs. Mehta and Maiser are leading the development of a study to explore these topics further. This presentation is a works-in-progress, and the presenters are hoping to engage the audience in discussion about qualitative methodology that involves partnership with patients and care partners. 

Ambereen K. Mehta, MD, MPH, FAAHPM is an Associate Professor of Palliative Care in the Departments of Medicine and Neurology at the Johns Hopkins School of Medicine. She graduated from the Johns Hopkins Bayview Medical Center Internal Medicine residency program in 2015 and completed her fellowship in Hospice and Palliative Medicine at the National Institutes of Health in 2016. Since 2020 she has been part of the palliative care faculty at the Johns Hopkins and is the only palliative care expert in the Johns Hopkins Center for Specialty ALS Care. Before this, she was part of the palliative care faculty at the University of Virginia and Medical Director of the UVA/Hospice of the Piedmont Inpatient Hospice Unit (2016-2018) and University of California, Los Angeles where she developed the palliative care program in the multidisciplinary ALS clinic (2018-2020).

Her research interests include studying quality of life and improving care for people living with ALS and other neurological diseases. She has received awards in education including the 2020 UCLA Hospice and Palliative Medicine Fellowship Faculty Award Excellence in Education Award and the 2022 Inaugural International Neuropalliative Care Society (INPCS) Tara Cook Award for Innovation in Neuropalliative Education.

She currently co-chairs the Northeast ALS Consortium Palliative Subcommittee (NEALS) and has chaired the INPCS Strategic Communications Committee and the American Academy of Hospice and Palliative Medicine (AAHPM) Neuropalliative Special Interest Group.

Sam Maiser, MD completed his medical school, neurology residency, and clinical neurophysiology fellowship at the University of Minnesota.  He then completed his hospice and palliative medicine fellowship at Medical College of Wisconsin.  He returned to Minneapolis for a neurology and palliative medicine position at Hennepin Healthcare where he is the medical director of the ALS Center of Excellence at Hennepin Healthcare, associate professor of neurology and medicine (palliative division) at the University of Minnesota Medical school, and the chair of the department of neurology at Hennepin Healthcare.  He splits his time practicing neurology and palliative medicine.  Dr. Maiser is actively engaged in ALS research as the site PI for several clinical drug trials.  He has also collaborated on numerous published papers regarding palliative care and quality of life for people living with ALS.  

Webinars in the series will consist of a presentation followed by an open Q&A and group discussion, with the webinar lasting an hour in total.  

The objective of these one-hour online webinars is to:

  • Provide both junior and well-established neuropalliative care investigators an opportunity to obtain feedback on research across varying stages of development, from initial idea to funding applications and publications.

While the primary target audience is researchers and health care providers, interested patients and family caregivers are also welcome to attend.

Additional details are described in Frequently Asked Questions or please email

If you would like to be added to our mailing list for notification of future Research Webinars, to suggest topics, or to sign up as a future presenter, please follow this link.


Darin Zahuranec
Co-Chair, INPCS Research Committee