Neuropalliative Care Research Webinar Series

The International Neuropalliative Care Society (INPCS) is pleased to announce the continuation of our monthly recurring Neuropalliative Care Research Webinar Series.

Our next event will take place on Wednesday, February 21st at 10am (US-Eastern) where we will be joined by Dr. Sandhya Seshadri, who will present a webinar entitled, "Spirituality & Spiritual Distress in Parkinson's Disease Caregivers".
 


Webinar/research description:
Despite the recognition that spiritual distress is an important component of burden and strain among Parkinson’s disease (PD) caregivers, there is limited knowledge of how spirituality and spiritual struggles impact caregivers. This webinar will discuss current knowledge on spirituality and spiritual distress among Parkinson’s Disease Caregivers.

The aims of this presentation are to:

  1. Describe the results of a scoping review of the literature on spirituality and spiritual distress among PD caregivers.
  2. Discuss the results of a recently concluded study on spirituality among PD caregivers.
 


Sandhya Seshadri, PhD, MA, MS is a Research Assistant Professor in the University of Rochester, Department of Neurology, Neuropalliative Care Division. She earned her doctoral degree from the University of Rochester School of Nursing and subsequently worked on inter-professional research studies that aimed to improve clinical care and research through patient-and family-centered approaches. Her research focuses on studying and developing novel ways to promote holistic care-partner centered supports that meet the emotional and spiritual needs of care-partners of persons with Parkinson’s disease and related disorders (PDRD) and other serious neurological illnesses. She is a co-investigator for a PCORI funded project on implementing team-based palliative care across 33 Parkinson’s Foundation Centers of Excellence in the United States, as well as the PI of a study on caregiving in Parkinson’s disease. She has published and presented on the palliative care needs, burden, and spirituality among Parkinson’s disease carepartners.


Webinars in the series will consist of a presentation followed by an open Q&A and group discussion, with the webinar lasting an hour in total.  

The objective of these one-hour online webinars is to:

  • Provide both junior and well-established neuropalliative care investigators an opportunity to obtain feedback on research across varying stages of development, from initial idea to funding applications and publications.

While the primary target audience is researchers and health care providers, interested patients and family caregivers are also welcome to attend.

Additional details are described in Frequently Asked Questions or please email info@inpcs.org.

If you would like to be added to our mailing list for notification of future Research Webinars, to suggest topics, or to sign up as a future presenter, please follow this link.

Sincerely,

Darin Zahuranec
Co-Chair, INPCS Research Committee