www.inpcs.org Privacy Statement
Version 1.0 Dated: March 17, 2021
"Personal information" is information that allows us to identify you. The types of Personal Information that we may collect from you includes, your name, home address, e-mail address, phone number, date of birth, and account information, such as your username, password, credit card information and other payment information.
We may collect person information from you on or through the Web Site or Services in a variety of ways, including, when you register on the Web Site, purchase a Service, participate in online contests, surveys or games, sign-up for a newsletter or subscription or purchase merchandise.
We also may, from time to time, receive Personal Information about you from third party sources to improve the Web Site and our Services, and for the various purposes outlined herein.
Device Identifiable Information
We may collect information that does not identify you personally but is linked to your computer or device ("Device Identifiable Information”). We collect Device Identifiable Information from you in the normal course of operating our Website. When you visit our Website to browse, read or download information, we automatically collect information about your computer that your browser sends, such as your IP address, browser type and language, access times, pages visited, and referring website addresses. We may use Device Identifiable Information we collect to analyze trends, help administer the Web Site, track the movement of visitors, to learn about and determine how much time visitors spend on each page of the Web Site, how visitors navigate throughout the Web Site or the Service and to gather broad demographic information for aggregate use.
We may also collect Device Identifiable Information through "cookies” or "web beacons” as explained below.
We may also collect information about your mobile device such as the type and model, operating system (e.g. iOS or Android), carrier name, mobile browser (e.g. Chrome, Safari), applications using our Website, and identifiers assigned to your device, such as its iOS Identifier for Advertising (IDFA), Android Advertising ID (AAID), or unique device identifier (a number uniquely given to your device by your device manufacturer), sometimes referred to as a mobile carrier ID.
We may also collect your location information, such as your zip code or the approximate geographic area provided by your Internet service provider (ISP) or location positioning information provided by the location services and GPS features of your mobile device when location services have been enabled.
For more information, you may review the FTC’s guide to opting out of online tracking for computers and mobile devices. You can also see the "Choice” section below for ways to opt-out.
In some cases, we have arrangements with third-parties, such as authorized Service Providers, agents or representatives, to collect and store the foregoing information on our behalf, to provide services in connection with hosting or the operation of our Web Site, or to facilitate reporting of analytics (such as with Google Analytics).
Although the Device Identifiable Information that we share, including the Device Identifiable Information that is not linked to your mobile device, does not identify you personally there is a risk that third parties who receive such information from us may be able to re-identify you through other information they gather.
Except for IP Addresses, we may match Device Identifiable Information with Personal Information that we may have from or about you, which would allow us to identify you, we may use this information to provide you with offers that are available where you physically are located.
When using the Services or when using certain third-party social networking services (e.g., Facebook, Twitter, Google +) (each a "Social Network"), you may have the option to connect your Service information and activity with your Social Network information and activity. If you authorize such a connection, you permit us to share or publish information about your Service activity with that Social Network and its users, and to access certain of your Social Network information, as disclosed to you at the time you consent to the connection. Information we may share with a Social Network may include but is not limited to: technical information about your Service activity, your Service comments or the videos you watch on Service. Information we may access about you, with your consent, from a Social Network may include, but is not limited to, your basic Social Network information, your location data, your list of contacts, friends or followers and certain information about your activities on the Social Network. If you permit a connection between a Social Network and a Service, we (and that Social Network) may be able to identify you and to associate information received pursuant to the connection with information we already have about you. For more information, please review the privacy disclosures and terms of your Social Network account, which govern how that account information is collected and shared with us.
How we may use or disclose your information
The Personal Information and Device Identifiable Information we collect from you may be used by us and by third-party service providers, such as hosting providers, data management companies, address list hosting companies, e-mail service providers, analytics companies, distribution companies, fulfillment companies and payment processors (collectively, "Service Providers") for a variety of purposes, including to:
(i) contact you about the Web Site and/or Services you have requested;
(ii) provide you with Services or information you have requested, or products or services you have ordered or signed up for, such as newsletters;
(iii) confirm or fulfill an order you have made;
(iv) administer your participation in a contest, sweepstakes, promotion, survey or voting;
(v) in order to facilitate the operation or maintenance of our Web Site, our Services, our operations and internal record keeping; and
Our Service Providers are given the information they need to perform their designated functions, and we do not authorize them to use or disclose Personal Information for their own marketing or other purposes.
Users may send information about our Members, our products, our Services and/or our Web Site to their friends and family members by using an "E-mail to Friend" or similar feature on the Web Site or in an e-mail that we have sent them. We do not further contact those individuals without their consent to do so.
Third-Party Marketers. With your permission, we may share your information with our marketing partners and other third parties so that they may contact you directly regarding special promotions or offers (such as subscriptions to and promotions for goods and services, including, for example, through participation in a co-sponsored sweepstakes or contest). We are not responsible for how these third parties may use your information, and such uses are subject to their own policies. If you have consented to share your Personal Information with third parties for such third parties’ marketing purposes, you can change your mind at any time and may let us know by following the instructions in the "Choices" section below.
Aggregated Demographic Information. We may use or share with third parties aggregated demographic information collected on or through the Web Site and Services for various purposes such as fan research and audience analysis. Aggregated demographic information does not include and is not linked to any Personal Information that can identify you or another individual person, but we may use your to IP Addresses to verify users' locations for various purposes, including blackout restrictions.
Other Disclosures: We may also share Personal Information and Device Identifiable Information under the following circumstances: (1) if required by law, such as by a court order, statute, regulation or rule, through legal process, or for law enforcement purposes; (2) in the event of a corporate transaction involving any of our businesses, such as the sale of that business or all or most of INPCS’s assets or equity to another company; (3) in the event of a bankruptcy, insolvency, reorganization, receivership or assignment for the benefit of our creditors; (4) if we determine it necessary in connection with an investigation or in order to protect our legal rights; or (5) in response to requests from federal, state, local or foreign law and civil enforcement agencies, such as a search warrant, subpoena or court order.
California Privacy Rights
California Civil Code Section 1798.83, also known as the "Shine The Light" law, permits our customers who are California residents to request and obtain from us once a year, free of charge, information about the Personal Information we disclosed to third parties for direct marketing purposes in the preceding calendar year. If you are a California resident and would like a copy of this notice, please send an e-mail to info@INPCS.org or write to us at 5841 Cedar Lake Road, Suite 204, Minneapolis, MN 55416. Not all information sharing is covered by the "Shine The Light" requirements and only information on covered sharing will be included in our response. Under California law, businesses are only required to respond to a request once during any calendar year.
Chat rooms, forums and message boards
The Web Site may make chat rooms, forums, blogs, message boards and other community features and activities available to you and other users. If you post Personal Information online, it will be publicly available, and you may receive unsolicited messages from other parties. We cannot ensure the security of any information you choose to make public in a chat room, forum, or message board. Also, we cannot ensure that parties who have access to such publicly available information will respect your privacy. Please exercise caution when deciding to disclose Personal Information in these areas. We reserve the right (but assume no obligation) to review and/or monitor any such community areas on the Web Site.
Third party advertising
Examples of some of the third parties that collect information from users of this Web See the "Choices” section below for ways to opt-out.
Short message service
We may make available a service through which you can receive messages on your wireless device via short message service ("SMS Service"). You understand that your wireless carrier’s standard rates apply to these messages.
If you subscribe to one of our SMS Services, you may be required to register and provide Personal Information. We may also collect the date, time and content of your messages in the course of your use of the SMS Service. We will use the information we obtain in connection with our SMS Service for the purpose of sending the SMS messages. If fees are charged to your wireless account invoice, we may provide your carrier with your applicable information to facilitate the transaction in connection therewith. Your wireless carrier and other service providers may also collect data about your wireless device usage, and their practices are governed by their own policies. We may also contact your carrier, which may access the content of your wireless account, for the purpose of identifying and resolving technical problems and/or service-related complaints. We do not guarantee that your use of the SMS Service will be private or secure, and we are not liable to you for any lack of privacy or security you may experience. You are fully responsible for taking precautions and providing security measures best suited for your situation and intended use of the SMS Service. You may change your mind and unsubscribe to SMS Services at any time by following the instructions in the "Choice" section above.
If you have agreed to receive communications or solicitations from us, but you later change your mind, you can revise your preferences on the "Account" section of the Web Site or email us at firstname.lastname@example.org. You also may opt out of receiving all future promotional e-mails from us by clicking on an opt-out or "unsubscribe" link within the promotional e-mail you receive. Please understand that if you opt out of receiving promotional correspondence from us, we may still contact you in connection with your relationship, activities, transactions and communications with us.
You may also opt out of our SMS messages by texting "STOP" or another applicable keyword to the short code applicable to the particular SMS Service (as further described below).
If you have agreed to have us share your Personal Information with third parties so that they may contact you about promotions, offers and other information, you can revise your preferences on the "Account" section of the Web Site or email us at email@example.com. If you do request to have us stop sharing your Personal Information with other entities for their direct marketing purposes, such request will only apply as of the date of your request, and we will not be responsible for any communications that you may receive from entities that received your Personal Information prior to such request. In these cases, please contact that entity directly or click on the opt-out or "unsubscribe" link that should be included within the promotional e-mail you receive from such third party.
You may opt-out of receiving ads from advertisers by clicking the Unsubscribe icon on advertisements that are sent to you. Opting out does not prevent you from seeing ads; it simply means that network advertisers will no longer collect data for the purpose of providing you targeted ads. These opt-out tools will only function if your browser is set to accept third-party cookies. If you delete an opt-out cookie or all your cookies from a browser's cookie files, change web browsers or change computers, you will no longer be opted out of our data collection and ad targeting, and we may place a new cookie unless an opt-out cookie is again reset on that browser. Opting out using one browser on one computer will not opt you out using any other browser on the same or another computer.
We use reasonable security efforts to protect the data in our possession. However, no method of transmission or storage of data is 100% secure and we will not be responsible for any damage that results from a security breach of data or the unauthorized access to or use of information, whether Personal Information or Device Identifiable Information. To the extent we provide your Personal Information to any third parties, we will request that they use reasonable security measures to protect your information.
Accessing, reviewing, updating or correcting your personal information
If you want to access, review, update or correct inaccuracies in your Personal Information, you can revise your preferences on the Web Site or email us at firstname.lastname@example.org or write to us at 5841 Cedar Lake Road, Suite 204, Minneapolis, MN 55416. Upon receiving your communication, we will take appropriate steps to update or correct such information in our possession, or to remove you from our catalog and mailing list. Your preferences include, for example, your profile information, as well as any shipping, payment and account information (if applicable), as well as whether you want to receive communications from us. You can access your preferences by logging-in to your account. If you want to close your account with us and have us delete the Personal Information in it (except for information that we keep for record-keeping purposes), you should contact our Privacy Administrator. We may request certain Personal Information for the purposes of verifying the identity of the individual seeking access to their personal information records.
Links to other websites and services
If you wish to object to or raise a complaint on how we have handled your Personal Information, you may contact us at email@example.com. You may also be able to have your Personal Information transferred by contacting us at firstname.lastname@example.org.
If you are not satisfied with our response or believe our processing of your Personal Information is not in accordance with law, you may register a complaint with a governmental authority. The International Neuropalliative Care Society controls the Personal Information collected via the Web Site and Services.
Special rules for children
General Rules. Although most portions of the Web Site are directed to general audiences, we do not knowingly collect Personal Information from children under 18. If we learn we have collected or received Personal Information from a child under 18 without verification of parental consent, we will endeavor to delete that information.
Personally, Identifiable Information collected on or through any portions of our Web Site that are directed to children under 18 may be shared with Service Providers (as defined above) with whom we contract to operate this Web Site and some of our Services. These Service Providers will use such Personal Information of Web Site visitors only for the purposes of carrying out these operations. To the extent required or permitted by law, we may also collect, use and disclose such Personal Identifiable Information in connection with security-related or law enforcement investigations or in the course of cooperating with authorities or complying with legal requirements. We may also use Web Site users’ information as permitted by law to protect our rights or property, our website, or its users and their safety. As set forth above, we endeavor to maintain the confidentiality, security, and integrity of the Personally Identifiable Information collected from your child. Other than our Service Providers and as described above, we will not share your child’s Personal Information with third parties.
International Neuropalliative Care Society
5841 Cedar Lake Road, Suite 204
Minneapolis, MN 55416
Phone: (952) 641-2281
Fax: (952) 545-6073