INPCS-IAHPC Course: Palliative Care in Neurological Conditions

This course is in partnership with the International Association for Hospice and Palliative Care (IAHPC). The goal of this course is to increase the palliative care knowledge and skills of those managing patients with neurological conditions.

Target audience

The target audience is health care professionals working in limited resource settings, including:

  1. Physicians and nurses working in palliative care who encounter patients with neurological conditions.
  2. Neurologists who encounter patients with palliative care needs.
  3. Other health care professionals (primary care clinicians, physical therapists, rehabilitation specialists, social workers, etc.) who interact with patients with neurological conditions and their families.

The course is offered to IAHPC and INPCS members. It will be presented in live, recorded sessions and uploaded to the INPCS website. The sessions we are planning will covering various topics relevant to palliative care in neurological conditions. 

Learning objectives

This course is designed to increase the knowledge and skills necessary to provide patient-centered palliative care to patients with neurological conditions. 

The curriculum covers different neurological conditions and basic principles associated with assessment, effective pharmacologic and non-pharmacologic treatment options, and appropriate therapeutic regimens. In addition, several modules will include caregivers and patients who will share their experiences with the participants.

Participants who complete all modules will receive a certificate of completion of the course.

Requirements

  • You must be a current INPCS or IAHPC member to access this course.
  • You must be a current INPCS member to view videos of past modules on this site.

MODULES AND SPEAKERS

Date Module Faculty Patient/Caregiver Topic Video
June 13 1 Dr. Audrey Foster-Barber
Professor of Child Neurology
University of California-San Francisco (UCSF)
Benioff Children's Hospital
USA
Erica Baer
Darlene Spicer
Palliative Care in Children with Neurological Conditions

Panel Discussion with Parents of Child with Chronic Neurologic Illness
(Members Only)
June 20 2 Dr. Simone Veronese
Head of Research
Fondazione FARO ETS
Turin, Italy
Charles White Palliative Care in Persons with Multiple Sclerosis

Panel Discussion with Person with Multiple Sclerosis
(Members Only)
June 27 3 Dr. Jessica M. Besbris
Director of Neuropalliative Care
Cedars-Sinai Medical Center
Los Angeles, USA
Sarah Gibson Palliative Care in Persons with Brain Tumors

Question and Answer with Person with Brain Tumor

(Members Only)

July 4 4 Dr. Mataa Mataa
Neurologist
Chipata level one hospital
Lusaka, Zambia
Ms. Rose Adams

Neuropalliative Care and Spiritual Care in Alzheimer's Disease and Related Disorders in Low Resource Settings

Question and Answer with Carepartners of Persons with Alzheimer's Disease

(Members Only)

Rev. Richard W. Bauer, BCC
George Washington Institute for Spirituality and Health
Washington, DC, USA
Mr. Steve Miyanda
July 11 5 Dr. Whitley Aamodt
Assistant Professor of Neurology
University of Pennzylvania
Philadelphia, USA
Bernadette Skobjak

Palliative Care in Persons with Parkinson's Disease and Related Disorders

Question and Answer with Carepartner of Person with Parkinson's Disease

(Members Only)

July 18 6 Dr. David Oliver
Honorary Professor
Tizard Center, University of Kent
UK

Karen Saunders

Palliative Care in Persons with Amyotrophic Lateral Sclerosis

July 25 7 Dr. Andrew Huang
Research Instructor
University of Rochester
New York, USA
Sameerah Baker

Palliative Care in Persons with Severe Acute Brain Injury

Panel Discussion with Person with Acute Brain Injury

MODERATORS

Professor Russell Portenoy, MD
IAHPC Senior Advisor, Education and Research
Clinical Professor, Voluntary
Department of Family and Social Medicine
Albert Einstein College of Medicine
New York, USA

Lukas Radbruch, MD
Chair of the IAHPC Board of Directors
Director of the Department of Palliative Medicine
University Hospital
Bonn, Germany
Director of the Palliative Care Centre
Helios Hospital Bonn/Rhein-Sieg

Dr. Andrew Huang, MD
Research Instructor
University of Rochester
New York, USA

Katherine Irene Pettus, PhD
IAHPC Senior Advocacy and Partnerships Director
USA