A world where high quality, person-centered care is available to all people and families affected by neurologic illness.
To raise standards of care for all people affected by neurologic illness.
The overarching purpose of the International Neuropalliative Care Society (INPCS) is to foster the growth of this field by creating a community. Activities of INPCS include building professional networks, supporting research, developing educational materials and opportunities, creating guidelines for clinical practice, and advocacy.
We recognize “people affected by neurologic illness” to include persons living with these disorders, their families and the healthcare providers involved in their care.
Person-centeredness. Seeing people impacted by neurological illness as more than their disease or their role (e.g. a patient, a caregiver, a clinician).
Equity, Inclusivity and Diversity. All are welcome and valued in this society. We seek to eliminate barriers to this care and work towards universal access.
Collaboration. If you want to go quickly, go alone. If you want to go far, go together.
Joy. Recognizing the value of the positive.
Curiosity. Keeping doors and eyes open.
Intentional. Using our time and energy for meaningful work.
Improve clinical care for persons living with neurological disorders by championing palliative models of care and offering resources to facilitate these models in practice.
Provide education around neuropalliative care by developing educational materials, in-person trainings, meetings, and assessments of neuropalliative care skills and knowledge, to encourage accrediting bodies to incorporate neuropalliative care education. This would also include education for persons living with neurologic illness and creating atlas of disease roadmaps.
Promote advocacy around issues important to improving access to neuropalliative care and related resources, and to improve the person-centeredness of care for persons affected by neurological disorders.
Support research initiatives in neuropalliative care by creating professional networks, career development opportunities, financial support for pilot projects and young investigators, publishing opportunities, and a forum for open collaboration.
Create a neuropalliative care community where professionals, persons living with these illnesses, philanthropists and other persons with a passion for this work can find a home.