TUESDAY, SEPTEMBER 9, 2025
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) / LEADER(S) | ROOM |
|---|---|---|---|
| 8:00am-12:00pm | INPCS Huntington's Disease Working Group |
|
Neuroscience Residents Conference Room |
| Working Group: Non-Profit Organizations and Neuropalliative Care | Benzi Kluger | Eller Telepresence | |
| 9:30am-12:00pm | NeuroCARES 2025 Morning Session | INPCS Research Committee | Goldman Auditorium |
| 12:00-1:00pm | Lunch | Sonntag Pavilion | |
| 1:00-5:00pm | The ACTIVE Guidelines Working Group: Advancing Care Planning, Caregiver Support, Treatment of Symptoms, Individualized Goals of Care, the Voice and Values of the Person, and End-of-Life Coordination in Alzheimer’s Disease and Related Dementias | Leonard Sokol | Neuroscience Residents Conference Room |
| 1:15-3:45pm | NeuroCARES 2025 Afternoon Session | INPCS Research Committee | Goldman Auditorium |
| 5:00-7:00pm | INPCS25 Welcome Reception | Sonntag Pavilion |
WEDNESDAY, SEPTEMBER 10, 2025
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) | ROOM |
|---|---|---|---|
| 7:30-8:30am | Breakfast On Own | ||
| 8:30-9:00am | Welcome/Opening & President's Address | Benzi Kluger | Goldman Auditorium |
| 9:00-9:30am | Neuropalliative Care Advocate of the Year Award Presentation to Priya Treesa Thomas "Between Decline and Dignity: Building an integrated, inclusive and innovative model for Neuropalliative care in India" Within the collectivistic, family-centric culture in India, as with several other communities, neuropalliative care is under-recognised as a standard of care for many neurodegenerative disorders requiring the care. We present a model of care where the strengths of the system can be optimally utilised to ensure that the gaps in care for neurological decline is addressed through an integrated and inclusive model highlighting the dignity of the individual and the caregivers. |
Priya Treesa Thomas | Goldman Auditorium |
| 9:30-9:45am | Break | Marley Lobby | |
| 9:45-10:45am | "Bereaved Dementia Caregivers: Who Thrives? Who Merely Survives? What Can You Do to Help?" Each year, 1.5 million dementia caregivers become newly bereaved, yet their experiences vary widely. While some adjust over time, others face significant unmet needs with lasting emotional and clinical consequences. Drawing on years of research, theory, and community collaboration, we present a novel model that identifies who is most at risk, when, and why—offering clear targets for intervention. A longstanding community partner with lived experience then shares insights on the model’s relevance and real-world application. |
Zach Baker | Goldman Auditorium |
| 10:45-11:00am | Break | Marley Lobby | |
| 11:00-11:30am | INPCS State of the Science 2025 | Jori Bogetz Alex Presciutti |
Goldman Auditorium |
| 11:30am-12:00pm | Outstanding Scientific Contribution Award Presentation to Jean Kutner "There's No Place Like Team Science: The Power (and Joy) of Collaboration" Scientific discovery is rarely a solo endeavor. Over the course of my own research journey, I have learned that the most impactful insights and the most rewarding experiences emerge from strong collaborative teams with complementary expertise and backgrounds, drawing on multifaceted perspectives. In this talk, I explore the principles of team science through both evidence and experience, using The Wizard of Oz as a narrative framework to illuminate the distinct roles, challenges, and transformations that arise when individuals come together in pursuit of shared discovery. This session invites participants to consider their own place in the team science journey and provides practical insights for building and sustaining equitable, high-functioning research collaborations. |
Jean Kutner | Goldman Auditorium |
| 12:00-1:00pm | Lunch | Sonntag Pavilion | |
| Optional Lunch Symposium - Presented by Acadia Pharmaceuticals Inc. "Exploring First-Line Prescription Treatment for Hallucinations and Delusions Associated With Parkinson's Disease Psychosis: Clinical Insights and a Patient Perspective" * Those who do not wish to attend the sponsored lunch symposium can pick up their boxed lunch in Sonntag Pavilion and eat it in Marley Lobby or Goldman Auditorium |
Austin Oblack, DO | ||
| 1:00-2:00pm | Poster & Exhibit Hall Time | Marley Lobby | |
| 2:00-3:00pm | "Palliative Care for ALS: Updates from National & International Collaborations" We will begin the session with a summary of recent, national surveys of ALS and palliative care clinicians as well as people living with ALS and their care partners about what's working well vis a vis palliative care for ALS and opportunities for improvement. We will then describe the INPCS Palliative Care for ALS Working Group including recents activities, accomplishments, and how to get involved. We will also describe the role and activities of the International Alliance of ALS/MND Associations. We will conclude with a panel discussion about what is needed to advance knowledge and practice regarding palliative care for ALS and how INPCS members can get involved. |
Kara Bischoff Ambereen Mehta Julia Simon |
Goldman Auditorium |
| 3:00-3:15pm | Break | Marley Lobby | |
| 3:15-4:15pm | INPCS Lifetime Achievement Award Presentation to Robert Holloway "Managing the Not-Yet in Neuropalliative Care" Managing prognostic uncertainty is one of the great challenges in medicine and a particular challenge in neurology. This talk reviews the impact of prognostic uncertainty in neurological diseases and strategies to help clinicians manage uncertain futures for patients, families, and ourselves. Science and medicine can no longer ignore the impact that prognostic uncertainty has on the human experience. |
Robert Holloway | Goldman Auditorium |
| 4:15-4:30pm | Break | Marley Lobby | |
| 4:30-5:30pm | “Gratitude and Self-Compassion: Tools to Care for Self and Others” Gratitude and Self-Compassion are ways of thinking that can improve our emotional well-being. Both gratitude and self-compassion can help to view ourselves in a more positive light and to see the good around us. It may sound simple, but too many of us have difficulty finding gratitude and self-compassion in difficult times. Research shows benefits in using self-compassion and gratitude in caring for ourselves and employing tools to assist others with gratitude and self-compassion. We will review research surrounding the use of gratitude and self-compassion, as well as demonstrate some practices that can be used to benefit oneself and others. |
Christi Lero Carrie Wester |
Goldman Auditorium |
THURSDAY, SEPTEMBER 11, 2025
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) | ROOM |
|---|---|---|---|
| 7:30-8:30am | Breakfast on own | ||
| 8:30-9:00am | Live Poster Showcase | Stephanie Bartlett Sandhya Seshadri Paul Vermilion |
Goldman Auditorium |
| 9:00-9:30am | Tara Cook Award for Innovation in Neuropalliative Education Presentation to Yaowaree "Noona" Leavell "A Tale of Two Worlds: Growing Neuropalliative Excellence Through Hybrid Vigor" This talk is a reflection on what it means to educate and be educated across specialties and roles, and how mutual learning can cultivate a culture of trust, curiosity, and deeper patient-centered care. We will explore themes related to the Teacher as a universal societal role, and explore the ways it is enriched diverse Neurology and Palliative community engagement. |
Noona Leavell | Goldman Auditorium |
| 9:30-9:45am | Break | Marley Lobby | |
| 9:45-10:45am | "International Neuropalliative Care: Efforts to Increase Awareness" This talk will highlight recent efforts to increase awareness of neuropalliative care on a global scale. Part 1 will discuss the recent World Health Organization Intersectoral Global Action Plan (IGAP) on Epilepsy and Other Neurological Disorders. Part 2 will discuss the development of a neuropalliative care program in India. Part 3 will involve a panel discussion between speakers and other international contributors. |
Whitley Aamodt Krithika Rao |
Goldman Auditorium |
| 10:45-11:00am | Break | Marley Lobby | |
| 11:00am-12:00pm | "Neuropalliative Care as Anti-Ableist Care" This presentation will review topics on disability justice and ethics as they relate to hospice & palliative medicine, and specifically neuropalliative care. The disability rights movement, neurodiversity movement, and the concept of anti-ableism will be outlined. I will discuss our responsibility, and unique position as palliative providers, to providing anti-ableist care. |
Talia Shear | Goldman Auditorium |
| 12:00-1:00pm | Lunch INPCS Business Meeting & Town Hall ALL ATTENDEES ARE WELCOME! |
Sonntag Pavilion | |
| 1:00-2:00pm | Poster & Exhibit Hall Time | Marley Lobby | |
| 2:00-3:00pm | "Multidisciplinary Care for People Living with Dementia and Their Care Partners" This presentation explores an innovative interdisciplinary palliative care program designed to support individuals living with dementia and their care partners. Emphasizing a holistic and team-based approach, the program integrates medical, psychosocial, and educational support to enhance quality of life and promote dignity throughout the dementia journey. A unique feature of the session includes a personal narrative from a dedicated care partner, who shares his day-to-day experiences in caring for his mother. |
Ashley Lautar Calli Carlson Amanda Weiler Brian Flaherty |
Goldman Auditorium |
| 3:00-3:15pm | Break | Marley Lobby | |
| 3:15-4:15pm | "Building the Future of Palliative Care: Research" This talk will review the development of palliative care research and address future needs and directions. |
R. Sean Morrison | Goldman Auditorium |
| 4:15-4:30pm | Break | Marley Lobby | |
| 4:30-5:30pm | "Palliative Care Futurist" This session will trace the rapid growth of the new field of palliative medicine; identify important gaps in access to palliative care; and discuss policy options aimed standardizing quality of and access to palliative care for appropriate patient populations. |
Diane Meier | Goldman Auditorium |
| 5:30-5:45pm | Closing Remarks: Conference Retrospective Prize Giveaway INPCS26 Location Reveal |
Benzi Kluger Farrah Daly |
Goldman Auditorium |
